Thursday, January 20, 2011

Cost of Friendship

So, yesterday Jace came home from school. Later, he showed me a dime and a penny and I asked him where he got it from.

He said that a boy in his class had given it to him and said he could keep it if Jace would be his friend.

An 11 cent friendship. Part of this made me sad- everyone has such a desire to be included and wanted, no matter the cost.

I told Jace to give the money back and tell him that he'd be his friend for free.

True friendship can't be bought.

Snipits of Life

Seems like it used to be so easy to blog.

I'm trying to reclaim my life so to say...that explains my absence. I've been proclaiming that I'm having post-traumatic stress disorder. Maybe not officially, but it's funny now that things have settled, I feel more behind, more stressed and more out of control than I felt in the heat of all our troubles.

I swear it's the effect of seeing all that I've had to let go out of necessity. Drawers didn't get cleaned out, laundry was never caught up, things that needed decorated got pushed aside, years of photographs are waiting for my attention to put in albums or atleast print them or something. And now here I am, able to deal with it all now and it can be overwhelming picking up the pieces of two years of complete mayhem.

Lately I've just really been wanting an "easy" button. I want my house clean and to stay clean...how can kids destroy a full days work so quickly? I hate laundry...it's the never-ending job. I wish Rylee's speech development would come quicker, but as I know too well....it's a patient process and she's making progress, so I should be happy about that. I wish Jace didn't love to watch TV so much- I get stressed everytime he's sitting there, thinking that he should be more productive (beside the fact that TV drives me crazy...I don't need more noise in my life!). And Jaden.....oh this child. Seems like every other minute he's whacking someone over the head with something....or biting...or hitting...or getting into all loads of mishchief.

Basically it's life. It's not easy. Even when you get one hard thing over with, other things come along and challenge you differently. Miley was onto something when she said, "It's the climb".

So, this year...I'm trying to reclaim life. My goal for 2011 is "Life should be enjoyed, not just endured." I want to focus on really enjoying things more. Enjoy the parts of my house that are clean and organized and little by little do something everyday to improve it. Enjoy my kids, my husband, my friends and make time to plan some fun things. We went over to a neighbors house for game night the other night...had a great time. We took the kids bowling and to play games at Fat Cats for Justin's birthday...and had a great time! I always get home from these things and think, "We need to do stuff like this more often" and we do, so we are. This is the year!

I've got to get back into updating our blog. I love looking back on our memories and moments. It helps me enjoy things more as I look at the pictures and write about things. So the blog will hopefully be more regular from here on out.

Just wanted to jot down a few thoughts of where I'm at right now....just keep swimming, swimming, swimming.

Tuesday, November 30, 2010

The End Has Come...

I should be in bed....Rylee has her last treatment tomorrow, starting at 6:30 a.m.

So actually, today marks the end of a very long journey for us. This is the last of many procedures we have endured. I'm just so overcome with gratitude to be finished...for her and for us.

There are so many words to say about this, but I decided I wanted to quickly share the lesson we had at Family Home Evening tonight.

There is a story in the scriptures about ten lepers. When Jesus entered a certain village, he met ten men suffering from a disease called leprosy. They pleaded with Him to have mercy on them. They cried out to Him, “Jesus, Master, have mercy on us” (Luke 17:13). Jesus told them to go and show themselves to the priests. As they went to do so, they were healed.


Even though all ten lepers had been healed, only one of the men thought to return and thank Jesus for the miracle He had performed for them. The man “turned back, and with a loud voice glorified God, and fell down on his face at [Jesus’] feet, giving him thanks” (Luke 17:15–16).

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I feel like the one tonight. At the end of 2008, Rylee's blood was 90% leukemic. Today...she stands a 94% chance of surviving. We always want to be the one that is grateful and never the 9 that forget. We know what we have been given and we hope that we can live up to that blessing.

Thank you all so much for your ongoing encouragment and support! We're amongst the survivors now- that feels so great! We have finally arrived.

And just to make you aware (some stats):
  • An estimated 259,889 people in the United States are living with, or are in remission from, leukemia.
  • An estimated 43,050 new cases of leukemia will be diagnosed in the United States in 2010.
  • The most common type of leukemia in children is acute lymphocytic leukemia (ALL), which will account for about 5,330 new cases this year.
  • About 31 percent of cancers in children aged 0-14 years are leukemia.
  • The most common cancer in children 1 to 7 years old is acute lymphocytic leukemia (ALL).
  • The leukemia death rate for children 0 to 14 years of age in the United States has declined 76 percent from 1969 to 2007. Despite this decline, leukemia causes more deaths than any other cancer among children and young adults under age 20.
  • About 447 children under the age of 15 are expected to die from leukemia in 2010.

If you ever have the chance to donate to childhood cancer research....do it! Do it for Rylee and all the other children who have fought and survived.

Monday, November 8, 2010

Halloween 2010

Ahhh! Where did October even go? It's frightening the way time passes so quickly.
We had a great Halloween. We decorated (not carved or painted) our pumpkins. These pumpkin parts were a great find- very kid-friendly! I loved how fun it was for the kids to pick their faces, plus it was clean and the kids were able to do their pumpkins independently for the most part. Your pumpkins don't wither away either- I just took the parts out and now they are "fall pumpkins" on our doorstep for Thanksgiving.
Jace (football player) had a Halloween parade and party and Rylee's (cute bee) preschool class dressed up too. Little bubs went as a skeleton and was as cute as can be. We went trick or treating around our neighborhood & the weather was actually great! I wish Idaho always had a warm fall.

My best Halloween Tips: Don't go overboard on costumes- kids only wear them for a few hours. My best secret is buying things that will double as dress-up clothes for every-day play. Jace got this football uniform for Christmas and worked great as a costume. Last year we did the same things for Rylee- my mom gave her some princess dress-up for her birthday and that's what she was for Halloween. Shop after-Halloween sales, let your kids use them all year, then it's there for Halloween. Jaden's skeleton costume is actually pajamas, which he needed. We get double the use.
Also...idea for candy. Let your kids pick freely for a day or two. Then, they forget they have it. Secretly stash a zip-lock bag full somewhere and save it for Christmas stockings. Also....only open a bag or two at a time for trick or treaters. If you only open as needed, you can put entire bags up for Christmas too. Most candy will stay fine for 2 months.

Wednesday, September 29, 2010

2 Year Mark

Today is our DOD (Date of Diagnosis). 2 years ago today, we heard the news that changed our lives. Rylee has cancer. About this time, we were aboard Life Flight, fighting for our daughter's life. We are in a much better place today.
It's unbelievable to me that we're already here. I remember sitting in the hospital room at Primary Children's, thinking that this day was a long time coming. And it has been a long road....yet it has flown by.
Rylee was just 18 months at diagnosis. She is now 3.5 years old. Jaden, our then unexpectant baby, is now nearly 20 months old- older than Rylee was at diagnosis. Yet, I look at him and cannot even fathom doing all that we did with a child his age. She was born with the strength to do this...it was part of her plan.
We have received so many blessings. So many little miracles. We have experienced some of our greatest sorrow, yet some of our sweetest joys. It's definitely been a bitter-sweet battle. We've lost a lot, but we've gained a lot too.

Rylee has been a little trooper. She has fought a good fight. She's been through so much, yet she's never resisted. She took things as they came. She's never questioned it. She has made it all bearable for me.

This is her just waking up from the anesthesia after her spinal tap last month. She's probably had over 20 of these. She only has 1 left.

Today she had chemo. Her blood counts look much better than they did 2 years ago. When we arrived at PCMC her HCT was a 10! Normal is like 37. The nurses in the ER at Primary's all took a double take...they couldn't believe she was alive and had a count that low. That's a moment that takes your breath away.


Here we are this summer at Relay for Life. This photo is from the Standard Journal- did you see us on the front page? Don't mind me: I'm telling Rylee where the camera is. Don't mind Rylee: She was tired- of all the days to skip a nap!

What a journey! One leg of the race is almost finished- treatment. She has two more hits of chemo (Vincristine); 1 more spinal tap; 2.5 more months of her daily medication (Mercaptopurine); 11 more doses of home-chemo (methotrexate); 10 more doses of her once a week med (Dapsone); and 15 more days of steroids (Dexamethasone) left. You better believe I know all of these drugs plus spelling, dosage and everything else by heart. Some of them will only need refilled one more time. I can't even imagine. These drugs have become part of our normal routine. "Rylee, brush your teeth, go to the bathroom, come take your chemo, go to bed." It's amazing what you can learn to live with.

Today's treatment was basically October's treatment-just how the days fell. She gets chemo every 28 days. She gets to push October back by a few days because we'll be out of town, so her next one will be the first of November and then her last one will probably fall right around Dec. 1. We will then finish out home meds for another week and SHE IS DONE!!! Merry Christmas to us.

I've been a little nervous about crossing back over to the other side. I decided today that when treatment ends, we will be excited and hopeful, which is better than anxious and fearful, if you ask me. Rylee will continue to get blood checked monthly and if things continue to look good 6 months post-treatment, we'll be able to have her port removed. Of course she'll be checked her whole life, but checking beats treating any day.

I must say that 2 years out isn't so bad. Sure we hear a lot of "My belly hurts." or "My bum hurts." We still have our good days and bad days. But..Rylee is in preschool this year, she's in speech therapy (trying to catch up, since her body was a little busy at that point in development) and she learned to ride her bike without training wheels this past weekend. She's just like any other 3.5 year old girl....I am so grateful that we're here and that she's here with us!

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P.S. I'm wanting to put together something for Rylee to recap her cancer journey. If you have any pictures (10/2008-present), thoughts, perspectives, comment, etc. regarding Rylee's cancer journey/experience from anything that we've shared or you've seen first-hand, please leave a comment or email me (send pic here) at natalie-taylor@hotmail.com. I know I've seen some family members' pictures that caught moments that I can't even remember-- I'd love to have a copy.

Thanks!

Wednesday, September 1, 2010

All Your Best Ideas

Hi blog friends- are you shocked that there is finally a post? I don't know where the days go....I need to dedicate some time to this within the next few weeks.

But...for now, I'm wanting to gather all of your best ideas. Not that I needed another thing to do, but my neighbor is the PTO President and has somehow reeled me in.

We need to do some fundraising- our kids go to a new school and has a little bit of playground equiptment, but really need more stuff.

So...I want to know some school fundraising idea. I know my blog readers live everywhere & I'm curious to hear what other schools/places have come up with.

Give me all your ideas---everything you've seen done. There are so many creative/brillant minds out there.

Keep checking back here too---I'm going to work on updating some stuff little by little.

Thanks-- Natalie

Tuesday, June 15, 2010

Jaden Lately....

Oh....my little baby bubby
[bubby is his nickname, used more than his real name]
What hasn't he been up to or into lately?

He keeps me going. He's constantly on top of the tables. He eats soap. He drinks bath water. He bit a fake baguette in my sister's table center piece. He put our neighbor dog's tail in his mouth (the dog is in the pit bull family)! He picked up a dead mouse in my parents' garage with his bare hands(YUCK!). He's a hitter...and a biter...and a pincher....and climber. He's almost always in full throttle mode.

He's aggressive, strong, independent, adventurous, curious and completely fearless!


What's a mother to do?

Don't be fooled by his cheesy little smile & adorable dimple.

He is trouble with a capital T. A complete rascal. Dennis the Menace in training. He never ceases to amaze me. I can't believe all that he can do or come up with, especially for his age.


He can be completely sweet & charming. He loves Jace & loves to climb up onto his bed in the morning, lay his head on top of Jace's and be totally sweet. When he wants to give kisses, he'll come up to your cheek and say, "hi" in a soft and sweet voice, then have you kiss him.
But...you've gotta watch your back because the next minute, he could very well be trying to bite your neck. He's as quick as a cat- he catches you off guard and can get you before you know it. And...he leaves a mark every time. Little stinker!

He NEVER Gives up.

He is very persistent and does not let anything stop him from going after what he wants. These chips? Oh yes, they were in the pantry with a clip on the top, folded several times, very secure-{because I know better}. Well...he took them and shook it until he got the clip free. This is him claiming victory over that clip.
He is the same way with figuring out a task. He loves a challenge. One day, he was suddenly very quite. {Not a good sign usually}. So..I went around looking for him and found him sitting there very nicely with his blocks and completely focused on the task of building a tower with them. He sat there & did not give up until he got them stacked.{Then got frustrated when it got higher and started falling apart.} I'm glad that his persistence can be a good thing as well. He can figure anything out. His determination is impressive.
He really doesn't let things stand in his way. He is thrilled by dogs, especially when they are riled up. Little dog, Dawson, was barking at big dog's Duke & Chavez and our lawn was the cross yard between the dog chatter. Jaden was so excited! He loves chasing after little Dawson. Of course, the sprinklers did not stop him one bit from trying to get to that dog. Thankfully, our neighbors dogs are nice & tolerate our curious little guy.

Jaden can be a little goof and has a funny personality. He knows when things are funny. He's also a little stink and turns not-so-funny things into a laughing matter. He'll do something that he knows is naughty, {like running into our road}. When I say Stop! or No! he just keep running and looking back dieing of laughter at that fact that I'm chasing him like a wild turkey. He's hard to discipline because he'll laugh a long time before he'll cry or learn a lesson . He's a little mess around for sure.

I thought he looked so cute squatted up in this planter basket. He thinks it's so fun to ride on this like a bike.


Did I mention that he's a climber? Oh, boy he gives me a run for my money. He'll crawl onto the toilets, then up to the counter and in the sink. He's also obsessed with toothbrushes, so he's sure to use someones when he's up there.

He scares me half to death most of the time. No matter what I do...he finds a way. He's sneaky and fast. One time we heard him crying and thought he was just in playing the kids. Justin went to get him and found him up in the sink with the water turned on himself. Hot water too! Luckily it hadn't warmed up yet. Bathroom doors are now always shut.

This little happy dance on top of the table. Combined with this sitting trick on the chair. Resulted in this tie-down:

I had to rope off all of our dining chairs. The rope solved the dining table problem, but that just gave him the challenge of the snack bar. He can now get up to the snack bar from the attached swivel chairs. AHHH! It's worse. It's already resulted in a fall, which resulted in a double bloody nose and goose egg on the forehead. You cannot take your eyes off of him for a minute.

He thinks he's one of the big kids. His little mind is definitely above his age level. He'll try anything the older kids do. One morning he tried jumping off our king-sized bed. He can also hold a baseball bat in position, extend a normal sized basketball over his head and make multiple baskets (when lifted up to the hoop), he can jump on the trampoline & get both feet off the ground. He can climb a ladder up to our slide, he jumps from the coffee table to the couch. And he can get up to and on top of anything, I swear. It's unbelievable (& nerve wracking!)
He's fearless. He's not afraid of anything, except he did used to be afraid of our stick horse, which was funny considering all that he's not afraid of.

He definitely takes life by the horns, so to say. He has a lot of courage. When our older two kids were being wanny's, clenched to Justin's leg, bubby walked right up to these lambs by himself. He wasn't afraid of them one bit- he would grab their tails and chase them around. They are interesting to him. I love his curiosity and willingness to give anything a try.

He makes a mess of everything. He's so independent & refuses to let you help him in anyway. He refuses a bib. He does not enjoy being spoon-fed. He wants the spoon or bowl or whatever himself and he'll figure it out. Needless to say, his clothes and eating area are a big mess.

Jaden is one strong kid. Does this amaze anyone else that he can hang from these bars? I can't believe it. He wants to do it over & over again too. He also had to get a CBC/lead screening test, which required a needle to take blood in his arm. Bubs sat there & didn't even cry. He is tough as nails, has a kung fu grip and super-baby strength. He's certainly has a lot of athleticism to him.

He's such a little wild man. He loves life and is curious in everything it has to offer. He jumps right into situations, without fear.

He loves mischief...

But....there is just something so sweet about him at the same time. He knows how to wipe and blow his nose and it's just too cute. I love hearing his language take off as well.

There is no doubt about it- He is hard to handle:

But how can you resist the little rascal?