Rylee Jane was born with a head-full of dark black hair
Her hair has probably been the subject matter of the majority of questions/comments we get regarding Rylee. People wondering if she had lost it, some surprised by how much she still had, others wondered whether she'd lose it at all. I remember in the first few days as we were learning about the new journey ahead, this was one aspect that both Justin and myself thought would be very difficult. We cried. None of this is easy, but for some reason, the hair thing makes it so obvious. It's like we might as well strap a big neon flashing sign on her that says, "Look! I've got cancer." It's either that or people wondering if we're some militant family raising up a GI Jane.
She had this great head of hair until she was about 6 months old. Then it started to thin as her head grew.
She was always a bow/headband/hat baby. I think she wears them well.
It has been thinning gradually all throughout, but this last week it was literally like hair today, gone tomorrow. I’ve been bracing myself for the day that it would fall out- a little anxious by the uncertainty of it. I wasn’t sure if it would be like a shock- she wakes up one morning and it’s gone suddenly, or if it would fall out in chunks or little by little. I even began to hope that maybe we wouldn’t end up losing it in the end, since she held on to it for so long. Well, the anticipation is over. Now I know. For her, it left kind of like an onion in reverse. Layer by layer from the bottom up. Rylee's also split or broke off, almost like being cinged as opposed to falling out in big chunks. She just has a few straggling pieces on the top layer, which we're debating whether or not to just shave it and finish the job.
Her first official pony tail was at 10 months old. A single front pony.
And two back pony's followed a few days after (once I figured out all I needed was a fine tooth comb and some tiny elastics).
By her first birthday, she was starting to have enough hair to try a few different styles. The front was getting longer.
She had more hair last Easter than this one. (Top double pony's). We never thought that would happen.
I’m glad that it happened gradually over time. It’s gets you used to the idea. Time has a way of healing and preparing you. I’m also thankful that she had it for as long as she did. In the beginning, they said some kids lose it in the first couple of months and some hold onto it for six months. They said if she kept it for this long, it wouldn’t be gone for long, because it’s able to start growing back in the maintenance phase, which we are now in. I thought it would be gone by Christmas, so having it for as long as she did was a nice bonus for us.
By last summer, we were just getting to the fun stage. I could do low pigtails in the back.
A full back pony with ribbon.
High pig tails, which basically became her signature look.
I even got to try some fun clips and curls.
And of course the double loop throughs.
Or an easy single paired with a bow. So many options, so little time.
So…it is, what it is. Bald is beautiful! Hats and headbands, here we come! I’m very anxious to see what her second crop of hair will grow back like. They say that it often grows back in a different color or texture. Come what may....and we'll love it!
{And then she was diagnosed with Leukemia and little by little we lost our little crop of hair. Here's a look at the goodbye process.}
October- month of diagnosis. Still there as normal.
By December we still had a good covering, although it had been breaking off over the past months.
January: I could still do most the styles we had been doing. We still had good coverage, but still thinning.
February: I thought that this would be our last back pony tail. The Dr. was certain the chemo she got this month would take her hair. It didn't.
I was thrilled that she had more hair than her new baby brother by mid-Feb. We could even still style it in back pony loop throughs.
A month later, on her last day of the last phase of treatment (March 19), was her last set of pony tails. It was now noticeably taking a toll. It would thin more and more each day.
By the very end of March, I could still get a single pony up front, but had to include all the bangs. It was pretty slim pickins' to get enough to fit in the elastic. I did the best I could with what we had to work with.
And her last official "ponytail" was at the first of April, just a few days before her second birthday. It was a back pony that looked more like the "shave the bottom, leave the top look" popular from the early 90's. Oh ya, we're bringin it back!
On April 7, we had thin, blow in the wind, bald on the bottom hair. The very first picture of this post was taken just 6 days later.
Goodbye hair.
So now we're here. Sporting looks such as:The hat
The headband (minus most hair)
But probably not so much this look. Although she's brought it to me a few times and says "bow". Um...maybe if we go to Disneyland?!
Also not sure about the do-rag look. We'll see. Never say never.
8 comments:
Rylee is still so cute without hair... We hope all is going well with you guys!
Rylee is beautiful inside and out, no matter what. Jen
She is so dang cute with and without her hair. You and Justin are such good parents.
I know it has to be hard, but if it makes you feel better I was bald until 2. And I love hats and headbands. She is darling, and it is probably one of those things that is harder on the parents than the child. Hope you are doing good with all three little tikes.
You have such a great attitude! Rylee is darling! It is not her hair that defines her. It is the sweet spirit she has and her sparkly eyes!
Natalie, Rylee is so cute! I can't imagine how hard everything has been. You are one of those people that other's look at and think...how does she do it? Congatulations on your baby! You guys have the cutest family!
The first time I saw Rylee was at Ryan Nelson's house when we had that dinner. I'm pretty sure she was in her 6 mo. bald phase (which Brin went through too, by the way)... and I remember talking to Devin later that night about how gorgeous I thought she was! She's even more beautiful now!!! Always will be!... "hair we are" or "hair we aren't" ha ha! ;)
Rylee seriously has the most gorgeous eyes I have ever seen on a little girl!! Honestly since I have never met her in real life I dont notice her hair...I have soo many friends with little girls at 2that have NO hair so it seems so normal to me. You are such a great person Natalie you really have such a way of looking at things. I am so inspired by you each time I read your blog! I hope you continue to do so well and little Rylee too! She really is such a blessing to you Im sure!!
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